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Transforming Care

This page lists resources for those looking to develop better independent living choices for people with a learning disability and autistic people as part of local and regional NHS England and NHS Improvement Learning Disability and Autism programmes and/or local authority transformation or service improvement plans, including a selection of useful information for commissioners (opens new window) and case studies (opens new window) from NHS England.

The Housing LIN is pleased to share its experience and insights working with NHS England and several local Transforming Care Partnerships to help develop their strategic housing partnerships and operational plans. For more about how we can help localities develop a better range of housing choices, download our brochure (opens new window).

You can also find more general information on our care and support at home pages.

Why are we stuck in hospital?

Published by the University of Birmingham, College of Social Sciences, this guide was created to help overcome the barriers to people with learning disabilities and/or autistic people leaving ‘long-stay’ hospital.

Building the right support for people with a learning disability and autistic people - Action Plan

This wide ranging action plan brings together, in one place, the commitments that have been made by different organisations to realise these aims. It aims to make further and faster progress, and drive long-term change for people with a learning disability and autistic people, including boosting the supply of supported housing.

Good Lives: Building Change Together

Published by Learning Disability England, Good Lives: Building Change Together is a framework that brings together people’s thoughts and ideas about what it will take for everyone with learning disabilities to be able to live their good life.

Supporting adults with learning disabilities to have better lives

This outcomes and improvement framework, commissioned by the LGA and the ADASS, seeks to help directors of adult social services work with their colleagues and partners to identify how they can improve how they support adults with learning disabilities and autism (LD&A).

The Hidden Costs of Support Experiences of family carers who support someone with learning disabilities

This report by NDTi explores the differences between living in residential care and supported living settings for people with learning disabilities. The main difference in theory between these two housing models is whether the person’s support is provided in-house by the same organisation as the housing provider (residential care) or whether housing and support are provided separately (supported living).

ADASS/Home Group Report : Transforming Care – how can progress be improved

It is nine years since the abuse of people with learning disabilities or autism or both at Winterbourne View came to light. At the time, the Housing LIN signed up to the resultant sector Concordat and committed itself to publish information that support our members to provide good quality care across health, housing and social care. We have continued to do so under our dedicated webpages on housing and learning disability.

Right Support, Right Care, Right Culture

This guide from CQC outlines how they regulate providers supporting autistic people and people with a learning disability in accordance with other national guidance.

Supported housing for people with long-term care and support needs

This Housing LIN report sets out what is required to ensure there is sustainable development of supported housing for adults with long term care and support needs.

Self-building our Lives: Social Care Research Report

This ESRC research report written by the Universities of Southampton and Dundee seeks to inform this discussion on reforming social care and transforming services. Its’ focus is on people with learning disabilities serves to provide important lessons over how social care can enable all people with support needs to respond to the advances made by personalisation and build meaningful lives in their communities.

Helping People Thrive: Stories and Lessons from Transforming Care

This guide by Learning Disability England is the first of two planned practical guides looking at how to transform the lives of people with a learning disability and/or autism who have been detained in hospital or in Long Term Segregation for too long.

Enabling positive lives for autistic adults: A quick guide for social workers

This SCIE/NICE quick guide sets out how to identify care and support needs and a range of interventions that can help support autistic adults living fulfilled lives.

Person-centred future planning

This quick guide will help practitioners to support older people with learning disabilities when they are planning for the future.

A Fair, Supportive Society: Summary Report

This report looks at how we can improve life expectancy and quality of life outcomes for people with disabilities.

Transforming care – the challenges and solutions

Outlined in this resource produced by VODG, are key steps and challenges in helping people (including those with learning difficulties) move out of long-stay inpatient care back into the community.

Care and support of people growing older with learning disabilities

This guideline from NICE covers care and support for adults with learning disabilities as they grow older, with the aim to support people to access the services they need as they get older.

Commissioning Services for People with a Learning Disability: Good Practice Guidance (Wales)

Developed for the National Commissioning Board for Wales, this good practice guidance helps Regional Partnership Boards in developing approaches to the integrated commissioning of services for people with a learning disability.

How-to guide 5 housing: For people with profound and multiple learning disabilities

This guide to housing is one of 11 joint guides from Mencap and PLMD Network, designed to help local areas implement the ‘Raising our Sights’ recommendations.

Learning Disabilities Market Position Statement: Good Practice Checklist

This good practice checklist is based on a review of published learning disability market position statements by IPC and assesses whether they are actually helping to shape the market and to explore their implications for people with learning disabilities and their families.

Learning disabilities and behaviour that challenges: service design and delivery

This draft guideline from the National Institute for Health & Care Excellence concludes that People with learning disabilities and behaviour that challenges should be better cared for in the community, whilst also providing recommendations to improve efficiency.

Care and Treatment Reviews: Policy and Guidance

This updated (2017) policy and guide is based on the principle that ‘Hospitals are not Homes’ and that people should be supported to live in community settings. It also contains a checklist for commissioners responsible for CTR.

Building the right support – dealing with complexity

In this guest blog by James Allen, managing director of Consensus, considers how independent learning disability service providers can embrace fast track change and navigate the complex landscape of care

How do you involve people with lived experience in your decisions?

The National Autistic Society, Mencap and The Challenging Behaviour Foundation guidelines designed to help TCPs ensure the right people are involved in their plans

Local support for people with a learning disability

This House of Commons Public Accounts Committee report reports on progress made to move people with a learning disability out of mental health hospitals and into the community.

Making it happen - A guide for campaigners about Transforming Care Partnerships

This guide by Mencap is for campaigners who want to make sure things change for people with a learning disability, autism and/or challenging behaviour

Building the right support: A national implementation plan to develop community services and close inpatient facilities

In October 2015, NHS England published a national plan and service model which set out how people with a learning disability and/or autism will be supported to lead more independent lives and have greater...

Building the right home - transforming care for people with a learning disability, autism or both

Jointly by NHS England, the LGA and ADASS, this new housing guidance supports NHS and local authority commissioners to expand the housing options available for this group of people who form part of the...

Supporting people with a learning disability and/or autism who have a mental health condition or display behaviour that challenges

NHS England have published a draft national framework designed to improve the care of people with learning disabilities, shifting services away from hospital care and towards community-based settings....

What is the evidence for the cost or cost-effectiveness of housing and support options for people with care or support needs?

This is the first of four discussion papers NDTi is publishing in their series, 'Housing Choices: Exploring and comparing the characteristics of housing and support arrangements for people with care...