A stronger collective voice for people with dementia

This JRF report discusses the Dementia Engagement & Empowerment Project (DEEP), which was a one-year investigation aiming to highlight groups and projects involving people with dementia. The report offers specific ways forward for organisations wishing to engage with people with dementia. It found that:

• There are only a small number of groups led by, or actively involving, people with dementia that are influencing services and policies.
• 'Influencing' work includes national lobbying and meeting with government officials, local lobbying of services, media work, training and education, participating in advisory groups, awareness-raising, and speaking at events.
• Most groups undertook influencing work alongside peer support and social activities, and were local and relatively informal.